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10 Rare
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0:45
wfmynews2.com
What is a rare disease and what causes it?
At least 1 in 10 people are diagnosed with a rare disease, according to the National Organization for Rare Disorders.
Feb 23, 2022
Rare Disease Stories
0:39
🗓️ Tuesday, February 24 at 9:30am 📍 Big Night Live, Boston | Virtual options also available Through discussions and stories, Rare Disease Summit will spotlight innovation across drug development, diagnostics, funding, and policy – while centering the voices of patients and caregivers driving change alongside industry and research leaders. Speakers include: ✅ Dr. Wendy Chung, Chief of Pediatrics, Boston Children's Hospital ✅ Kristen DeAndrade, Founder and Executive Director, Little Legs Big Hea
Facebook
The Boston Globe
1.3K views
2 weeks ago
0:26
17K views · 60 reactions | Stars bravely sharing rare disease stories in 2025! #CelebHealth #OliviaNewtonJohn #SelenaGomez #LadyGaga #Awareness2025 | Star Moment | Facebook
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2:20
Today is #RareDiseaseDay 2019! Watch and share the official Rare Disease Day 2019 video to see Lorena's story of living with Phelan-McDermid syndrome. Help raise awareness to break isolation for people living with a rare disease! #ShowYourRare National Organization for Rare Disorders, Inc. (NORD) Rare Diseases South Africa Rare Disease UK Rare Voices Australia Canadian Organization for Rare Disorders BBC News The Mighty BBC Stories | Rare Disease Day
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