New to a syringomyelia diagnosis and still looking for answers? Here is what is happening inside the cord. Syringomyelia is a fluid dynamics problem in the spinal cord. Cerebrospinal fluid CSF cushions brain and cord with each heartbeat. When outflow is blocked, pressure gradients drive fluid into cord tissue, through perivascular channels. The result is a syrinx that distorts sensory and motor pathways. Early changes often involve the crossing pain and heat fibers. Pain and heat can vanish whil
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New to a syringomyelia diagnosis and still looking for answers? Her…
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Sure... 🧐 what the racket does is important. But it’s really about how the body moves as a unit and how you position yourself that is going to help you find that LIMITLESS feeling when you hit 🎾 Now when it comes to the forehand, the non-dominant arm plays a crucial role in your ability to generate power, pace and control. 🔥 I like to “joke” that this is truly a two handed shot 😉 Now this new client came in (first time we hit together) saying she has always had issues... and when I spilled t
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Fizz’s MRI gave us answers — but not the ones we expected. She does have hydrocephalus, which we expected — but the cause is incredibly rare. In a healthy brain, fluid flows through a network of tiny channels to cushion and protect the brain and spinal cord. But Fizz has a blockage at the lateral apertures — tiny exit doors near the base of the brainstem that allow fluid to drain properly. Imagine water trying to leave a sink, but the drain is sealed shut. The pressure builds. Because the fluid
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Fizz’s MRI gave us answers — but not the ones we expected. She do…
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Gaslit. Misunderstood. Told it was “rare.” Then we found each other. Now we’re everywhere 🌎 -Steven Lopez Sr. #StevenLopezAdvocates #chiarimalformation #ChiariMalformationAwareness #syringomyelia #chronicillness #InvisibleIllness #ChronicIllnessWarrior #fypシ #worldwide | Steven Lopez Sr.
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Gaslit. Misunderstood. Told it was “rare.” Then we found each other. …
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IM CRYINGGG 😭😭 “Because i am hoping it’s going to help you” & still indeed DOES NOT. 💀 #fblifestyle #fyp | Arichards Scorpio
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IM CRYINGGG 😭😭 “Because i am hoping it’s going to help you” & st…
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no worries no worries #mri #chronicillness #syringomyelia #heds #chronicpain
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no worries no worries #mri #chronicillness #syringomyelia #h…
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Lana on Instagram: "🪶. In Sanggau, West Borneo, Indonesia, lived a husband named Fidelis Ari Sudewarto and his wife, Yenny, once full of life before a rare disease took her freedom. She suffered from Syringomyelia, a cyst growing inside her spinal cord, destroying nerves, robbing movement, and replacing every breath with unbearable pain. She could no longer eat on her own, stand without shaking, or sleep without crying. Doctors tried, but there was no cure, only a tiny hope to ease her sufferin
Lana on Instagram: "🪶. In Sanggau, West Borneo, Indonesia, lived a h…
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