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The family of Hayley Okines, the teenager from Bexhill who brought a rare genetic condition to worldwide attention, have spent Good Friday celebrating their daughter's short life. Hayley died in her mother's arms late yesterday evening at the age of seventeen. The condition, Progeria, caused her to age prematurely. | BBC Kent

We featured Hayley Okines a number of times on this programme - a young woman who faced the difficulties life threw at her with a great deal of humour and fun, despite having the rare genetic disorder progeria. Sadly she died earlier this month and her funeral was held today. Her condition caused her to age prematurely. Hayley reached the age of 17, several years longer than many people with progeria ever do. Today a letter from the Prince of Wales paying tribute to Hayley's "infectious love of

RIP - Suffering from progeria, inspirational teenager Hayley Okines - Old Before My Time died last week 'aged 104'... She published an autobiography, gave her autograph to Prince Charles and inspired millions - all by the age of 17: | Khaleej Times