Actor Colin Farrell recently disclosed that his son, James, has Angelman syndrome, one of the driving factors behind Farrell's support for finding a cure for Angelman syndrome and for launching the ...

Colin Farrell says his personal life has inspired him to launch a new foundation aimed at helping people with intellectual disabilities. The actor, 48, recently launched the Colin Farrell Foundation, ...

As it kicks off a pivotal phase 3 trial of its investigational treatment for Angelman syndrome (AS), Ionis Pharmaceuticals is ...

Henry Edberg dug through the play kitchen at his home in Rosemount before serving up the daily special to his older brother. “Vegetables are healthy, so I’m giving you the vegetables,” Henry, 3, told ...

Actor Colin Farrell and his ex-partner Kim Bordenave have been quite open about the condition that has afflicted their son, James Farrell, who has been diagnosed with Angelman Syndrome. News emerged ...

A new study lays important groundwork for a long-lasting treatment, or even cure, for Angelman syndrome—as well as a therapeutic path forward for other single-gene disorders. Babies born with a faulty ...

Shari Blum first heard about the rare neuro-genetic disorder Angelman syndrome when her daughter Elizabeth was 13 months old. The syndrone’s symptoms often include balance issues, gross and fine motor ...

EVERY DAY. HELLO, WHAT THREE YEAR OLD MADDIE SARGENT IS DOING WALNGKI IS NOTNGHI SHORT OF A MIRACLE THE DAY YOU FIND OUT YOUR CHILD IS DIAGNOSED WITH HER RARE DISEASES WHEN YOU’LL NEVER FORGET THE ...

Families of children with rare diseases will often start non-profit organizations to raise money for early-stage research on their child's condition. Fewer of those organizations start their own ...

William Edberg smiles as he takes a a bite of his favorite meal, macaroni and cheese, on Saturday, Feb. 4, 2023, in his Rosemount, Minnesota, home. Born with Angelman syndrome, a rare neurogenetic ...